Posts

Get Out There!

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As recent as 20 years ago it was difficult if not impossible for people with disabilities or seniors with mobility issues to fully enjoy their state and national parks because of very limited access. I remember when I first incurred my disability and realized I could not access the places that used to give me so much contentment and joy. I was frustrated and disappointed. Before my physical disability I paid little attention to what might not be accessible. My first camping trip after my mobility limits was very eye-opening. The bathroom doors were very heavy and too narrow to get my walker in without turning it sideways then hoping someone would be around to hold the door open. The stalls were also too narrow for the walker. The grounds were uneven and treacherous and nearly impossible to find a level area to fish from. In order to take a shower I took my folding outdoor chair to sit on inside the stall. There were steps to every building. The campsites closest to the restrooms w...

Its Not Debtors Prison But Pretty Close

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Can the state actually take your home for medical bills? Under certain conditions the answer is yes and it targets the elderly specifically. This federal law has been a well-kept secret since its inception in 1993 when all states had the option since Medicaid began in 1965 to recover some medical cost from recipients after they die. However, it was optional and states could only recoup Medicaid costs spent on those 65 years or older. When Congress passed the 1993 omnibus budget bill it “required” states to recover the expense on long-term care and related costs for deceased Medicaid recipients at 65 or older. The affordable care act did nothing to change this existing federal law. It did however move the age backward to 55 years old after considering the aging baby boomer population on the horizon. That puts potentially more estates on the hook for Medicaid reimbursements after the beneficiary dies. Medicaid is a joint federal-state program and as in any other program receiving mone...

Take Note

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I’ve always been a list maker and a note taker. This practice was not because I was always an efficient person, far from it. I raised four children as a single mom and either worked two jobs or one and double shifts. Without lists and notes my life would have been more chaotic than it already was. There was business meetings, new policy’s to learn, teachers meetings, event dates, birthdays, grocery shopping and on and on. After the kids grew up and moved out I still found myself making lists and taking notes. I just never considered doing it any other way. I’m a big believer in technology and use it all the time, however, when I attempted to use my phone or tablet memo app’s or my laptop software I lost control of my organization and had to keep looking back at the memos so I wouldn’t forget. Seemed like I couldn’t keep anything in my thoughts. That made me curious why and how memory works in the brain so I did some research and found some interesting facts. Our brain uses two dif...

When Non-Profits Go Astray

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What is a non-profit exactly? A nonprofit organization (NPO, also known as a non-business entity) is an organization that uses its surplus revenues to further achieve its purpose or mission, rather than distributing its surplus income to the organization's directors as profit or dividends. They have a tax exempt status granted by the Internal Revenue Service after conditions are met such as purpose, limitations on spending and external safeguards. The main purpose of a nonprofit is to serve the needs of the communities they have indicated in their application. They are not “agencies” or “businesses” they are private as opposed to governmental, self-governing, voluntary and of public benefit. In the United States there are three main economic sectors that serve the citizens “wants” and “needs”. These are the government, the for-profits and the nonprofits. For- profits supply our “wants” based on supply and demand. These profits are based on delivering those products and service...

The Art of Advocacy

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Why is self-advocacy so under used in our society? I think because it gets confused between aggressiveness and assertiveness. This confusion is just as misunderstood by the business you are dealing with (usually more so) than the individual trying to assert their rights. In the process citizens get pushed down, intimidated and managed into silence. Not all is lost however because there is a weapon you can use and it is the absolute key to your success. That weapon is knowledge of the guidelines, goals and mission of the business or organization that you feel is treating you unfairly and denying you services, programs and respect. You will almost always find the employee who denies you and disrespect you does not represent the business or organization you are trying to access. Government and state programs have employees who are overwhelmed and burn out runs rampant. If you do not learn to advocate you will most likely be shoved to the side and forgotten. Businesses like wise expec...

Anger

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Do you know what the most dangerous emotion is? It is depression . There is no way to use it. Like a car that has run out of fuel you can try to push it forward but you just can’t get anywhere. You can keep trying to crank the engine over but nothing ignites it. Soon you realize it is worthless as it is. What you need is fuel and that fuel for humans is anger. I’m not talking about the anger that hurts other people as that is completely counterproductive. I’m talking about the anger you can use as a tool to fire up the engine of motivation that can get you down the road and on your way to success. We were not given the amazing range of emotions so they could control us but so we could use them to enhance our lives. You know you are using anger to your advantage when you see it turn into will power, strength, endurance and determination. These are not passive feelings, they come from being fed up with apathy toward your environment or your own stagnate self. Anger is at the oppos...

Ingenious Inventions

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Not too long ago society's expectations of a person with a disability and their potential was pretty limiting. Mobility equipment inched along with adaptive aids slowly advancing in design and function. Then in 1990 the Americans with Disabilities Act was enacted opening up the world for the disabled to get out and enjoy their community and country. Part of this important law refers to equal access to transportation and public and commercial facilities. The demand began to increase for equipment that would provide a way to integrate into everyday life of travel, grocery shopping, camping, football games and other activities previously very limited for people with disabilities. The medical equipment industry begin to see money in this new demand. As it always has been, profit is the real mother of invention. Money being the motivating factor led to more inventions, improvements and options of medical equipment than ever before. We began to see things like stair lifts, portable and ...